Testimony Presented to the US House of Representatives Committee on Way and Means Health Subcommitee

TESTIMONY

Presented to the

UNITED STATES HOUSE OF REPRESENTATIVES
COMMITTEE ON WAYS AND MEANS
HEALTH SUBCOMMITTEE

Hearing on Medicare Chronic Care Improvement Program

Tuesday
May 11, 2004

Presented by
Janet S. Wright, MD, FACC

On behalf of the
American College of Cardiology

For more information contact the American College of Cardiology at (800) 435-9203


Chairman Johnson and members of the subcommittee:

I am here today as a practicing cardiologist and a Fellow of the American College of Cardiology, (ACC) an organization whose mission is to advocate for quality cardiovascular care-through education, research promotion, development and application of standards and guidelines-and to influence health care policy. My comments reflect the policy position of the College, although I could not presume to represent the diverse opinions of the over 30,000 members of the ACC. I do however, represent the interests of my patients and on their behalf, I express my gratitude for the efforts you make on a daily basis to improve health care in America. I believe that your contributions will initiate an historic improvement in the quality of health care for Medicare beneficiaries.

Any policy maker, health care professional or sick person in America knows that our health care system is broken. Our striking success in combating life-threatening illnesses has extended the lives of millions of Americans, and in that victory, converted acute events into chronic conditions. Our older citizens suffer multiple diseases, visit an average of seven doctors a year, and take more than twice that many medications each day. These patients need near-constant oversight and continuous care coordination to stabilize their conditions and to avoid the episodic, usually urgent and costly rescue from a preventable deterioration.

As seniors’ complex medical conditions multiply, the physician workforce is shrinking due to unmet needs for job satisfaction, adequate reimbursement, and liability protection, among other factors. Quality medical care takes time and resources to deliver and good doctors are struggling these days to care for the burgeoning chronic disease population. The therapeutic alchemy of the patient-physician relationship disintegrates under the pressures of today’s fragmented care interaction. When the personal connection breaks down between patient and doctor, so does adherence to advice, trust, satisfaction, and inevitably, the clinical outcome. To deliver excellent care, physicians need additional resources to provide patient and family education, to track practice adherence to established guidelines, and to supply our statistics to a variety of “measurers” in the health care arena. To practice 21st century medicine, practitioners must have current, complete, and accurate data. Those data, and the resources for gathering them, are absent in most medical practices today.

Advances in science, funded robustly by this Congress, have been translated into evidence- or guideline-based medicine, setting the standards of care and shaping medical decision-making. Yet few doctors can afford the information technology or human resources to bring these recommendations to the point of care delivery, much less to record, track, and report their performance, an increasingly common requirement in the medical marketplace. Despite best efforts of well-trained and dedicated physicians, our own measures of quality have demonstrated dispiriting gaps in care. Health care has metamorphosed; health care delivery systems have not.

Although I do not know the solutions to our complex health care crisis, I can list the basic characteristics of those solutions. Collaboration is critical as the problems are clearly insurmountable by any single organization or entity. Improvements will be incremental or staged because the distance we must travel from our present state to a significantly better one is staggering. Evidence or guideline-based medicine is the accepted standard, and a steady focus on quality, with all the attendant difficulties, will help guide us to a better system of care. The solution must be comprehensive, in the sense that quality care is to be delivered in all settings, for all conditions. Finally, and most importantly, the new system will be marked by enhanced communication on the macro level by adaptable IT and appropriate infrastructure, and on a personal level by a resuscitated patient-physician relationship.

The approach known formally as disease management has grown exponentially in the current chaos because it provides among other things, vital systematic links among participants in the health care system. Emphasis on populations, self-care instruction, and continuous cross-talk between patients and the care team mark a few of the unique features of the disease management approach that are missing in the traditional care model. Disease management harnesses information technology and other important tools to assist with application of evidence-based medicine, data collection and analysis, patient and physician adherence, and performance enhancement. Disease management brings constructive additions to current health practices and holds promise for improvements in care delivery.

As an example of highly effective disease management, I call your attention to a mature and profoundly valuable program which has provided education in self-management and health preservation, linked patients and doctors through frequent progress reports, and not just satisfied, but indeed, life-changed its participants. That program is one of the original disease management approaches known as Cardiac Rehabilitation. The design has from its inception been multidisciplinary, bringing together cardiac nurses, exercise physiologists, dieticians, and cardiologists with expertise in disease prevention and health promotion. These sophisticated programs begin with detailed intake interviews, identifying not only the medical conditions which require monitoring and management, but also the social and psychological hurdles to achieving and maintaining good health. The structured weekly sessions provide the continuous and repetitive feedback proven to effect changes in behavior. The care team members support these gradual, key behavioral shifts, become trusted sources of information, and most importantly, serve as community-extended radar, detecting early signs of decompensation, medication errors or poor adherence, and new or recurrent disease states.

Patients undergoing cardiac rehabilitation “graduate” armed with knowledge of their disease process, their prognosis, and their limitations; the latter most certainly reduced by the personalized protocol of exercise, nutritional counseling, stress-reduction training, and medical supervision. In these days of “drive-by” open heart surgery and two-day admissions for heart attacks, the educational process is so critical for the restoration of physical and mental health and improved functional status takes place in one and only one place: Cardiac Rehabilitation. Even with the fiscally constrained reach of cardiac rehabilitation programs, the disease management principles have succeeded in improving the outcomes and outlook for patients with cardiac disease.

The Voluntary Chronic Care Improvement Programs will incorporate many features present in the CR/DM model, features which are fundamental to solving our health care crisis. This unique design calls for collaboration among the system experts (DM), the medical pros (physicians and health care team), and the payers in a mutually rewarding arrangement for the benefit of patients with congestive heart failure, complex diabetes, and chronic obstructive pulmonary disease. The successful models/components will be identified in a three-year process and made available to the appropriate Medicare population in a staged fashion. Outcome measures of quality and satisfaction will be selected in advance, monitored, and reported, highlighting the use of information technology and reinforcing the practice of guideline-based medicine.

Even though there are specific targeted diseases in the Phase I programs, the approach is most appropriately comprehensive in the attention given to co-morbid conditions and overall health status. This is both complicating for the program administrators and absolutely necessary for the applicability of these approaches to real-life medical care of aged and disabled Americans. Cost data will be important, but not sole determinants of program success. Although typically unprofitable for hospitals, cardiac rehabilitation programs achieve striking gains in quality of life, patient satisfaction, and clinical outcomes. Phase I programs that predominantly emphasize well-established clinical outcomes are in the patients’ and ultimately, the country’s best interest. In fact, the very foundation of a disease management strategy is that early and frequent intervention ( whether education, medication adjustment, further evaluation, and/or alteration in treatments) improves the patient’s ability to function at the highest level possible. I strongly encourage selection of programs that focus on quality improvement, as those are most likely to result in concomitant enhancements in beneficiary and provider satisfaction. Finally, I trust that the programs selected for Phase I will recognize the therapeutic value of a healthy patient-physician relationship and will support fluid communication among members of the care team, family members, and caregivers.

In Section 721 of the Medicare Prescription Drug, Improvement, and Modernization Act (MMA) of 2003, Congress has broken new ground in health care delivery design. Many aspects of the MMA are revolutionary in the transformation of health care in the United States. New partnerships will be formed, innovative approaches will be tested, and the underlying audacious concept is that quality medical care will lead to better financial, satisfaction, and clinical outcomes.

That said, I believe that the greatest achievements of this legislation will be realized in an evolutionary way. Section 721 sets in motion a new direction in health care which will find expression in ways we cannot anticipate. We will learn from the experience of Phase I, and future innovators and disseminators will adapt the processes as populations and medical conditions mandate. I expect to discover through the Phase I project, the techniques and processes that work and those that need further modification or perhaps application in a different subset of patients. Learning where and how and in whom to apply these principles of care will be an invaluable lesson. I anticipate that practices, health plans, and other care delivery systems which are not part of the Phase I projects will follow the progress reports closely and begin to implement the winning strategies. The goal is to improve the quality of care for all, to close the gaps that still exist, and to do so in a cost effective manner which will enable us to provide care to all in need. It is my hope that as much meticulous care and concern go into these future designs as was invested in the crafting of this legislation and in its implementation.

I encourage physicians to investigate the Chronic Care Improvement Programs, to consider the potential benefits to their patients and their practices, and to participate however possible so that the ultimate delivery model reflects what we know to be true: compassionate individualized care is effective, essential, and rewarding. We will always treat one human being at a time and, in that moment, serve the larger population well. The opportunity now presents to combine this best practice of the healing arts with a high tech, population-based approach, a challenge which calls for the integrity and commitment of the brightest minds in health policy, system design, and medicine.

In closing, I share a physician’s wish list for the future perfect state of medical care. Many of these wishes could come true in the Phase I and II programs and they are essential components of a fit and functional health care system.

  1. I want to be on the design team for the process of care. (Physician involvement)
  2. I want to know my “score,” how it is calculated, and to whom it is reported (Quality/performance measurement)
  3. I want my patients to have ready access to a team of experts in my practice and community who can extend health care beyond our office visit. (Team care, primary and secondary prevention)
  4. I want current, accurate, complete data available when I need it so that I can incorporate it into my practice. (Information technology)
  5. I want my patients to have validated, self-care advice when they need and so they can use it. (Patient education, prevention, information technology)
  6. I must have the ability to afford to deliver this care. (Adequate reimbursement for a chronic care management system)

I deeply appreciate the efforts of this subcommittee in improving our health care system. Your dedication and commitment challenge all participants in health care to contribute our best to achieve creative and cooperative solutions.

   
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