The Future of ACC’s Registries

This post was authored by John Rumsfeld, MD, FACC, chief science officer and chair of the NCDR.

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Since the launch of the ACC’s National Cardiovascular Data Registry (NCDR), it has become the preeminent cardiovascular data repository in the U.S. with six hospital-based registries and the nation's largest practice-based registry, the PINNACLE Registry. Providing evidence based quality improvement solutions for cardiologists and other medical professionals, these registries are gathering extensive data with participation from more than 2,200 hospitals nationwide.

This year’s annual NCDR meeting was a huge success bringing in over 800 professionals representing all registry roles and experience levels, including registry site managers and data coordinators, nurses, physicians, quality improvement professionals and technical personnel.

Looking ahead, it is increasingly clear that clinical registry programs like NCDR will play a fundamental role in the future of cardiovascular care around the globe.  Registries such as the IMPACT Registry, which focuses on the management and outcomes of pediatric and adult patients with congenital heart disease undergoing cardiac catheterization procedures, and the STS/ACC TVT Registry, which tracks patient safety and real-world outcomes related to TVT procedures, are examples of ways the NCDR is growing to address new areas of cardiovascular practice in the U.S.

Meanwhile, international interest in registries for research and tracking purposes can go a long way towards identifying research opportunities, as well as areas for global improvement. Interest in the NCDR by countries like Saudi Arabia, Abu Dhabi, Brazil and Japan are indicative of the global effort to address heart disease.

International collaborations are key to the future of the ACC’s Registries and through these efforts we can use common data standards to understand quality of care internationally and to find ways to work together to improve systems of care and research.

ACC.12 attendees should check out the session, Transforming Health Care Delivery through CV Registries on Monday from 3:45 – 5:15 p.m. in McCormick Place North, N427. Also this year 29 abstracts based on NCDR data were presented. Stop by booth 10027 to pick up a copy of the Abstract Guide.

Here's my interview with CardioSourceVideoNews:

[youtuber youtube='http://www.youtube.com/watch?v=IQr3Agec5kI']


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