Thursday, March 16
12 – 7 p.m.

Goal of CHD Community Day: To provide opportunity for CHD Community to network and collaborate on common challenges. Need to compliment, not compete with, Scientific Sessions

Stakeholders: Pediatric Cardiologists, ACHD Cardiologists, CHD Surgeons, CHD Nurses, Chiefs, Training Directors, Administrators.

Moving Toward a Better Understanding of Long-Term Outcomes of CHD Care

12:00 p.m.

Welcome and Introductions
Robert Beekman, MD, FACC
Chair, Adult Congenital and Pediatric Cardiology Section
American College of Cardiology
Robert Campbell, MD, FACC
Co-Chair, Adult Congenital and Pediatric Cardiology Section Clinical Practice WG American College of Cardiology

12:15 p.m.

Advancing CHD Care: The Need for Long–Term Outcomes Measures
Gerard Martin, MD, FACC
Past Chair, Adult Congenital and Pediatric Cardiology Section American College of Cardiology

12:30 p.m.

Long Term Outcomes: The Patient Perspective
Brian Altman
Division Director and Acting Director of the Office of Legislation at SAMHSA/HHS

12:45 p.m.

Global Health Burdens of CHD Survivors (10 min each)

  • Psychosocial Challenges for Patients & Families
    Adrienne Kovacs, PhD
  • Non-Cardiac, Multi-Organ Consequences
    Curt Daniels, MD, FACC
  • Late Cancer Risks after CHD Care
    Arianne Marelli, MD, FACC
  • Vascular and Metabolic Health in CHD Care
    Samuel Gidding, MD, FACC

2:00p.m.

Cost as an Outcome

  • Cost Burden to Families
    Jodi Lemacks
  • Life-long insurability
    Susan Fernandes, PA-C
  • Relation of Surgical Performance to cost
    Meena Nathan,MD
  • Value creation through AUC in pediatric echo
    Ritu Sachdeva, FACC

3:15 p.m.

Opportunity for international collaboration around outcomes
Kathy Jenkins, MD, MPH, FACC

3:30 p.m.

Break

3:45 p.m.

BREAKOUT SESSIONS (TBC)

  • ACHD and Pediatric Cardiology Collaboration: Can a Long-Term Longitudinal Database be Created?
  • Society of Pediatric Cardiology Training Director breakout
  • ACPC Quality Network breakout (TBC)

5:00 p.m.

Breakout Reports (10 minutes each)

5:30 p.m.

Opportunities for Collaboration

6:00 p.m.

Adjourn

6 – 7 p.m.

Chiefs and physician leaders meeting