ACC.16 Patient Engagement Pavilion Brings Together Patients, Providers

Contact: Nicole Napoli, nnapoli@acc.org, 202-375-6523

WASHINGTON (Mar 25, 2016) -

The American College of Cardiology’s CardioSmart Initiative is hosting a Patient Engagement Pavilion at the 65th Annual Scientific Session in Chicago to showcase patient- and caregiver-centered programs, tools and resources.

The ACC is committed to quality patient-centered care, and through CardioSmart, the ACC recognizes that physicians need the right tools to better communicate and work with their patients in making treatment and care decisions. April 2-4, the Patient Engagement Pavilion will host national patient support organization representatives, leaders of top ACC patient-focused initiatives, heart disease survivors, government organization leaders, and physicians to provide a forum for patient-centered dialogue and collaboration.

Featured presentations include:

Saturday, April 2 

  • 9:45 a.m. – 10:30 a.m. CT
    Title: CardioSmart: ACC’s Guideline-Based Patient Education Program
    Description: CardioSmart, ACC’s patient education program, supports the needs of cardiovascular clinicians and patients through innovation and collaboration.
    Speaker: Martha Gulati, M.D., FACC, CardioSmart’s Editor-in-Chief
  • 10:40 a.m. – 11:10 a.m. CT
    Title: Beating the Odds: Living with Familial Hypercholesterolemia
    Description: The 2015 “I am CardioSmart Winner,” 24-year-old Christian Jacobs, will discuss his lifelong battle managing homozygous familial hypercholesterolemia.
    Speaker: Christian Jacobs, FH Foundation Advocate for Awareness and Board Member

Sunday, April 3

  • 10:25 a.m. – 10:55 a.m. CT
    Title:
    Why Should the Public Care About Public Reporting?
    Description: Details on the importance of public reporting and the ACC/NCDR’s new public reporting program – Find Your Heart a Home.  
    Speaker: Gregory J. Dehmer, M.D., MACC
  • 12:30 p.m. – 1:00 p.m. CT
    Title:
    FDA Patient Liaison Program: The Patient Voice
    Description:
    The communication tools and activities developed by the FDA’s Office of Health and Constituent Affairs program focus on supporting and encouraging patients and patient advocates in  FDA decision-making and policy formation.
    Speaker:
    Helene D. Clayton-Jeter, O.D., Food and Drug Administration

Monday, April 4

  • 10:30 a.m. – 11:00 a.m. CT
    Title:
    The Impact of Congenital Heart Disease on Families
    Description:
    Congenital heart disease impacts not just the child, but the whole family.  The vast majority of parents state that they think about their child’s congenital heart disease “every single day.”  Understanding this impact allows us to provide needed resources and support.
    Speaker: Jodi Lemacks, Esq., National Program Director, Mended Little Hearts
  • 12:00 p.m. – 12:30 p.m. CT
    Title: The Impact of Cardiac Health and Sudden Cardiac Survival in Sports, a TEAM Approach
    Description: Learn how an organized process as well as simple training policies and procedures can impact cardiac health and safety via the sports medicine specialty
    Speaker: George Chiampas, D.O., Northwestern University

The Patient Engagement Pavilion is sponsored by Astra Zeneca, Novartis and Sanofi Regeneron and is located in Booth #24035 in the Expo Hall. View a full list of presentations.

For more information on CardioSmart, visit www.CardioSmart.org or email CardioSmart@acc.org.

The ACC’s Annual Scientific Session, which in 2016 will be April 2-4 in Chicago, brings together cardiologists and cardiovascular specialists from around the world to share the newest discoveries in treatment and prevention. Follow @ACCMediaCenter and #ACC16 for the latest news from the meeting.

The American College of Cardiology is a 52,000-member medical society that is the professional home for the entire cardiovascular care team. The mission of the College is to transform cardiovascular care and to improve heart health. The ACC leads in the formation of health policy, standards and guidelines. The College operates national registries to measure and improve care, offers cardiovascular accreditation to hospitals and institutions, provides professional medical education, disseminates cardiovascular research and bestows credentials upon cardiovascular specialists who meet stringent qualifications. For more, visit acc.org.

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